How Much Phe — an amazing new resource by Virginia Schuett that allows you to look up the phe content of all of the foods listed in her book on any computer or handheld device. A must for everyone.
Low Protein Food List for PKU by Virginia Schuett
US Dept. of Agriculture (USDA)– the USDA database provides Standard References for the nutrients (including phe) of thousands of foods.
Perfect Vegetables by the Editors of Cook’s Illustrated Magazine
Vegetarian Cooking for Everyone by Deborah Madison
The Voluptuous Vegan and The Healthy Hedonist by Myra Kornfeld
The Modern Vegetarian Kitchen and Fresh Food Fast by Peter Berley
Sites with General Information on PKU:
Phenylketonuria: What is it? great intro into the basics of PKU
Patient Power Living with PKU provides a series of online programs with various experts in the field
Texas Department of Health State Services provides some great information and a teacher’s guide
Canadian PKU and Allied Disorders Inc a great site with up to date research information
Videos on PKU:
Meet Katy and her amazing family — an inspiring story about a beautiful young girl who was late diagnosed. Have some tissues handy.
PK-Who Adults with PKU who were born before Newborn Screening
For Social Networking and Support:
The PKU List-Serv – over 1500 members. To join, send an e-mail to email@example.com. Type: subscribe pku-support-l and your full name in the text and you are ready to join the group.
Cook for Love’s Facebook page — over 2,000 members of extremely helpful parents and adults who are always ready to offer support, answer questions, etc.
PKU Worldwide Support Group — a very active and helpful group
PKU.com – Information on PKU and an active discussion board where you can connect with others with PKU.
If we are forgetting any sites, please drop us an e-mail and we will add to the list!